At 22, I was diagnosed with Psoriatic Arthritis. I should have been loving life & going out every weekend with friends but instead I spent most of my time at home resting. I made plans when I was well but often had to cancel them due to the high pain levels. I still hate that part.
“You’re young, enjoy your life. You should probably go out more & you’d feel better”. Outsiders were always full of unhelpful advice & opinions.
Then when they heard I had Arthritis it was “You’re too young for that” or “Have you tried yoga/pilates/ginger/turmeric/losing weight/changing your diet/going to the gym/copper Pain relief bracelet. The list goes on.
The truth is I’ve tried it all. Everything. There was no miracle cure despite what people suggested.
You Don’t Look Sick
Even now, at the age of 29, people still say this to me. I don’t look sick because I’m a Mum, a Wife, I work Part Time & I make an effort when I go out. People often see what they want to see. Look deeper; I’m a well supported Mum with a great family. I have a Work From Home position so I’m able to manage my Arthritis & I make an effort to look well for me. It gives me a boost.
Just because I don’t look sick, doesn’t mean that I’m fine. You can look well & still be unwell.
I’ve spent much of my 20’s in pain because of my Arthritis. I grieve for the old me, the one that was full of life & active. The carefree & fun person that had that get up & go. Of course I feel like I’ve missed out & robbed of my youth.
I might not look sick but I am. It takes a great deal of strength to pretend I’m okay & to get through the day. My Arthritis is invisible but I’m not. I’m now 7 years on from my diagnosis & I’m learning to adapt with life with Arthritis. Let’s just say I’m enjoying life at a different pace.