I’ve been sharing my experience of pregnancy while living with a chronic illness. My last two blog posts have covered Managing My Fibromyalgia during Pregnancy & Arthritis & Pregnancy . I’d like to share my experience of accessing good maternity care & the support I’ve received so far.
The most difficult part of my journey was conceiving & coming off medication. It was a testing time coming off Methotrexate & reducing painkillers. I had a supportive Rheumatologist who respected our decision to have a baby & she supported me to reduce medication. She also referred me for further tests with infertility Specialists & I was referred to pre-pregnancy counselling.
At the time, I underestimated the importance of the pre-pregnancy counselling, it helped put a plan in place for when I did get pregnant & they made it clear that I would be consultant-led with regular hospital appointments & check ups.
At first, my maternity care was based with the Community Midwife as my GP arranged the first appointment. I had made it clear to her that I would be consultant-led & asked about the referral process to the consultant in question. She was dismissive of this & instead I was assessed by a consultant at the Health Centre who deemed me as “green” pathway & not a high risk. This didn’t sit well with me & my gut instinct told me that I would have to push for more support.
I chased up the hospital referral for the consultant & after many phone calls, I finally was given an appointment for the consultant at the maternity unit & was prescribed a low dose of aspirin as required for pregnant women with chronic conditions.
This was a turning point for me during my pregnancy & I’ve been seen every 4 weeks by consultant & midwife with regular growth scans. The maternity support I have received has been consistent with an assigned midwife & consultant who are aware of my conditions. I’m now 30 weeks pregnant with a clear plan in place with the view of being induced at 38 weeks.
If you are pregnant with a chronic illness, have a plan in place & ensure you receive the right support & don’t be afraid to ask for more support.
Baby Kelly,28 week scan.
This post was also published by The Mighty Site & can be accessed here: