Chronic illness & Maternity Care

I’ve been sharing my experience of pregnancy while living with a chronic illness. My last two blog posts have covered Managing My Fibromyalgia during Pregnancy & Arthritis & Pregnancy . I’d like to share my experience of accessing good maternity care & the support I’ve received so far.

The most difficult part of my journey was conceiving & coming off medication. It was a testing time coming off Methotrexate & reducing painkillers. I had a supportive Rheumatologist who respected our decision to have a baby & she supported me to reduce medication. She also referred me for further tests with infertility Specialists & I was referred to pre-pregnancy counselling.

At the time, I underestimated the importance of the pre-pregnancy counselling, it helped put a plan in place for when I did get pregnant & they made it clear that I would be consultant-led with regular hospital appointments & check ups.

At first, my maternity care was based with the Community Midwife as my GP arranged the first appointment. I had made it clear to her that I would be consultant-led & asked about the referral process to the consultant in question. She was dismissive of this & instead I was assessed by a consultant at the Health Centre who deemed me as “green” pathway & not a high risk. This didn’t sit well with me & my gut instinct told me that I would have to push for more support.

I chased up the hospital referral for the consultant & after many phone calls, I finally was given an appointment for the consultant at the maternity unit & was prescribed a low dose of aspirin as required for pregnant women with chronic conditions.

This was a turning point for me during my pregnancy & I’ve been seen every 4 weeks by consultant & midwife with regular growth scans. The maternity support I have received has been consistent with an assigned midwife & consultant who are aware of my conditions. I’m now 30 weeks pregnant with a clear plan in place with the view of being induced at 38 weeks.

If you are pregnant with a chronic illness, have a plan in place & ensure you receive the right support & don’t be afraid to ask for more support.

Baby Kelly,28 week scan.

This post was also published by The Mighty Site & can be accessed here:

https://themighty.com/2018/03/maternity-care-arthritis/

6 thoughts on “Chronic illness & Maternity Care

  1. I related so much to this post! When I became pregnant I hadn’t had my official diagnosis for Fibromyalgia but I was on a lot of pain killers and having to come off of them was so hard plus all the pains I got from being pregnant didn’t help. My midwife thought I was being dramatic until I ended up in hospital and got put on bed rest for the last 3 months of my pregnancy. We know our own bodies and we know when something isn’t right. I wish that patients were taken more seriously when they tell professionals how they feel because we know when something is wrong. It’s great you didn’t give up and kept fighting for the care you need, I wish I wasn’t so hush hush about it now in hindsight.

    Liked by 1 person

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